Abby's Army: March 2011

Thursday, March 10, 2011

Results

Abby's tumor has grown slightly but not enough to warrant any changes in her treatment plan. The neuro radiologist saw two areas of "very subtle increase" when compared to an MRI done in November 2009. The rest of the tumor is stable and there is no need to treat these changes so we will go back in 3 months and do it all again!

Thank you so much for your prayers, please keep them up!

Saturday, March 5, 2011

MRI Monday

I just realized that I forgot to inform everyone of our upcoming MRI. We will be heading to Memphis on Monday for an MRI. We will get the results Tuesday. Please pray that the tumor will have shrunk or stayed the same. Pray that the trip will go smoothly and that our family will be safe. Pray for all the children there at St. Jude. Thank you!

How We Got to Here-Updated August 2010

It all started with very small seizures. We are not sure how long she had been having them but they were getting more frequent. On April 23, 2009, we took her to Dr. Baker who sent us to the ER at Arkansas Children's Hospital. An MRI revealed a large brain lesion and Abby was taken to the ICU for 3 days. She moved out of the ICU and spent a total of 8 days at Children's. We saw several doctors who were all pretty stumped by what they saw. It didn't look like anything-tumor, infection, swelling. They put her on an anti-viral medication in case it was infection. Another MRI showed no changes. Some doctors thought it was gliomatosis cerebri but some didn't agree with that diagnosis so they decided to take some spinal fluid to analyze. They had to take it from the brain though because of possible swelling. We spent another night in ICU.

After she was discharged we contacted MD Anderson in Houston and St. Jude's. We flew to Houston where another MRI was performed. They informed us that it was gliomatosis cerebri. St. Jude's called later that day and informed us that they felt it was gliomatosis cerebri. That was not what we wanted to hear-gliomatosis cerebri has a 5% survival rate. However, St. Jude's neurosurgeon, Dr. Boop, wanted to try to remove some of the tumor. This allowed for a biopsy of multiple pieces of the tumor. On May 22, 2009, Abby underwent brain surgery. Almost all of her right temporal lobe was removed. Abby had to spend another night in ICU, this time at LeBonheur in Memphis.

The biopsy results surprised us all, it was not gliomatosis cerebri, it was a low grade glioma! God had answered everyone's prayers! The plan was to begin chemotherapy to stop the tumor from growing but our neuro oncologist, Dr. Armstrong, wanted to wait a few weeks to see how this tumor was going to act. We were once again surprised-the tumor wasn't growing. No need for treatment!! And that is where we are today. It has been over a year, and the tumor still has not grown. It's still there, big and nasty, but it is quiet right now. We go to St. Jude's every 3 months for an MRI and other appointments to monitor the tumor.

Abby's Army

Thursday, March 10, 2011

Results

Saturday, March 5, 2011

MRI Monday

Abby Summer 2010

How We Got to Here-Updated August 2010

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