Abby's Army: Monday, June 1st

Monday, June 1, 2009

Monday, June 1st

Just wanted to let everyone know we will be going to Memphis tomorrow to see Dr. Boop. I called today with concerns about her swelling-its not worse but not better either. I am also concerned about her not sleeping well. I really think everything is ok but I don't want to take any chances. He wanted us to come to his office and see him-I figured he would. Our appt is at 7:45 am so we are leaving early in the morning. Pray that everything will be fine with her incision and swelling and that there is some easy solution to the sleep problem. Also pray that we will have a safe trip to Memphis tomorrow.

5 comments:

Melissa L. ThompsonJune 1, 2009 at 10:54 PM
you got it, girl!! :) God is in control!
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AnonymousJune 2, 2009 at 8:13 AM
hey morgan, i just wanted to let yall know that i was thinging about yall. melissa told me yall were going to memphis today. i hope all goes well. i think by this time yall are there and already been to the doctor but i just wanted to let you know i was thinking about yall. tell abby i said get better. love yall see ya soon... randa
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AnonymousJune 2, 2009 at 11:45 AM
am praying for you guys. Much love! Samantha Herndon Hogan
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AnonymousJune 2, 2009 at 12:05 PM
Just read that you plan to meet with the doctor today. I will pray that your family has a safe trip. I will also pray that all is well, and all your concerns answered. I pray you get the results soon, and they are better than anyone could have ever hoped.
Love, Kellie Beggs
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Becky HalcomJune 2, 2009 at 3:18 PM
Conners. I just wanted you guys to know I'm thinking and praying for Abby's recovery. Hope everything turns out well at the doctor. Pray heals.
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How We Got to Here-Updated August 2010

It all started with very small seizures. We are not sure how long she had been having them but they were getting more frequent. On April 23, 2009, we took her to Dr. Baker who sent us to the ER at Arkansas Children's Hospital. An MRI revealed a large brain lesion and Abby was taken to the ICU for 3 days. She moved out of the ICU and spent a total of 8 days at Children's. We saw several doctors who were all pretty stumped by what they saw. It didn't look like anything-tumor, infection, swelling. They put her on an anti-viral medication in case it was infection. Another MRI showed no changes. Some doctors thought it was gliomatosis cerebri but some didn't agree with that diagnosis so they decided to take some spinal fluid to analyze. They had to take it from the brain though because of possible swelling. We spent another night in ICU.

After she was discharged we contacted MD Anderson in Houston and St. Jude's. We flew to Houston where another MRI was performed. They informed us that it was gliomatosis cerebri. St. Jude's called later that day and informed us that they felt it was gliomatosis cerebri. That was not what we wanted to hear-gliomatosis cerebri has a 5% survival rate. However, St. Jude's neurosurgeon, Dr. Boop, wanted to try to remove some of the tumor. This allowed for a biopsy of multiple pieces of the tumor. On May 22, 2009, Abby underwent brain surgery. Almost all of her right temporal lobe was removed. Abby had to spend another night in ICU, this time at LeBonheur in Memphis.

The biopsy results surprised us all, it was not gliomatosis cerebri, it was a low grade glioma! God had answered everyone's prayers! The plan was to begin chemotherapy to stop the tumor from growing but our neuro oncologist, Dr. Armstrong, wanted to wait a few weeks to see how this tumor was going to act. We were once again surprised-the tumor wasn't growing. No need for treatment!! And that is where we are today. It has been over a year, and the tumor still has not grown. It's still there, big and nasty, but it is quiet right now. We go to St. Jude's every 3 months for an MRI and other appointments to monitor the tumor.

Abby's Army

Monday, June 1, 2009

Monday, June 1st

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Abby Summer 2010

How We Got to Here-Updated August 2010

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