I haven't written in a while and thought I should probably update everyone on how we are doing. To make a long story short: Great!
Abby and Lyla both are keeping me on my toes-running, jumping, dancing, learning, fighting-all the fun stuff little girls do. They are best friends and worst enemies every day. I don't think I have ever written about my experiences going from working mom to stay at home mom but I LOVE it! It is so great to see their personalities grow and develop and have a front row seat to all that they learn and do and say. Abby has had no new symptoms/warning signs develop. She is a typical 5 year old in every way. Lyla likes to be her comforter-any time Abby gets hurt or get in trouble, Lyla is right there, patting her back and asking if she is ok. So precious!
I am now almost 36 weeks pregnant. All is going well with this pregnancy. I have started feeling really tired lately and all the typical pregnancy issues (reflux, back aches, insomnia, etc.) are making labor and delivery look better and better! I have had such an increase in my desire to hold her-I can't hardly wait! Everyone in the house seems to feel that way too. Abby and Lyla are talking about her more and Jason keeps saying that he can't wait either. She doesn't have a name yet so Abby and Lyla call her "baby sister". Lyla will raise up my shirt and hug and kiss my belly and say "I love you baby sister". Abby talks to her all the time, just like if she were really there looking back at her. She loves to put her hand on my belly and feel her move. Lyla isn't patient enough for that! We are slowly getting our house ready for another baby and it won't be very long until she is here!
As you can see, we are all doing really well. We just try to enjoy every day and make the most of it. Although Abby's tumor is never far from our thoughts, we try to not let it rule our life. We talk openly about MRIs and IVs and medicine and her scars without over talking, if that makes sense. When we pray we ask God to keep His healing hand on her. We watched part of the St Jude special with her and looked for all the doctors and nurses and places we recognized. She thought it was so cool that her hospital was on tv-she has no idea what a big deal St Jude is! She seems to take it all in stride-it is just a part of her life and she doesn't seem phased by it at this point. I don't know at what age she will understand the seriousness of her diagnosis but I pray every night that God gives us the wisdom to deal with her questions/concerns/fears as she grows.
She asked a while back why she had to take medicine every day-she figured out that not every little girl has to do that. I talked to her about how God makes everyone special and unique-we aren't all the same. And God had chosen her to be extra special-that was why she had to take medicine and why she has MRIs and 2 scars and that was why she had to stay in the hospital and have surgery. Not too long after that she declared to her cousins that she was special because God made her that way! Another day I heard her tell a cousin that she doesn't get scared because God is always with her! It feels good to know she takes what we tell her to heart.
Please keep praying for her and for our whole family. Pray that the tumor never grows and actually shrinks (so God can really show off His power)! Pray for our whole family to have peace in our hearts and for Jason and I to have wisdom when talking to her and Lyla and when making any medical decisions. Pray for Lyla and "baby sister" that we will always keep their feelings in mind and that they never feel left out. Pray for all the patients at St Jude and their families. Pray for my friend Kellie and her precious daughter, Alyssa. Alyssa's tumor has grown and they are facing big decisions. I would not be as ok as I am today if it weren't for God sending Kellie my way. She has been a constant source of encouragement and understanding. Thank you all for your prayers-you have no idea what they mean to us!
"This I recall to my mind, therefore have I hope. It is the Lord's mercies that we are not consumed, because His compassions fail not. They are new every morning: great is thy faithfulness. The Lord is my portion, saith my soul; therefore I will hope in Him" Lamentations 3:21-24